Every Journey Starts With A Single Step
Here’s how you can join me, The Sensible Celiac, in supporting every step of another journey that is amazing to me: bringing a new medical treatment to the millions who suffer from Celiac Disease and Non-Celiac Gluten Sensitivity.
Our goal together is to raise $10,000USD to help support the development of this medical treatment as it is currently going through clinical trials to eventually enter FDA approval and be brought to market. The entire cost of bringing a new drug to market can cost $20Million dollars. Together, we can put a dent in the costs and help this drug get into the hands of those who need it most.
Update 06/02/2016: we are currently working on applying for a matching program through my husband’s employer, which supports employee fundraising for 501(c) organizations.
Without funding, many treatments never even reach the market. This one is an absolute game-changer. When people with CD/NCGS are accidentally “glutened” in a restaurant, we get desperately sick; occasionally some of us die of complications.
Unlike what the media portrays as mere gastrointestinal distress (gas, bloating, diarrhea), a single gluten episode can easily lead to intestinal damage, massive inflammation of the abdominal cavity, severe anemia due to malabsorption, weakness, fatigue, ataxia, increased food sensitivity, peripheral neuropathy, lingering brain fog, severe weight loss, and other debilitating symptoms. In short, a gluten incident can be life-threatening. This pill in Phase III clinical trials (now taken over by Innovate pharma, see this article http://allergicliving.com/2016/03/15/celiac-disease-treatment-licensed-headed-to-late-stage-clinical-trials/ )is being developed to prevent this kind of life-threatening response, speeding recovery from accidental gluten ingestion.
People like me with CD are very careful with food, but it is always a matter of time before an accident happens; it’s the nature of our food industry. I would like a way to undo someone’s preparation mistake, or a food producer’s mistake.
Donate by clicking on the link below to donate directly to the Center for Celiac Disease Research and Treatment (Massachussettes General Hospital).
Why I am training for an Ironman
Hilary Topper, ATriathletesDiary.com Why I Will Become An Ironman (Imei Hsu) bit.ly/1KW2x3b
Ironman Your Journey Your Cause
Please come back here to find out more about supporting this cause and joining my worldwide cheering squad as I go from the refrigerator to the Ironman finish line in August 2016.